The Treatment Outcomes Survey can be found HERE.
The survey takes around 3-9 minutes. You will need a Google account to view or complete the survey. (The sign-in allows you to change your answers later if you try new treatments and would like to contribute more data.)
Questions can be addressed to glennchan /at/ gmail [dot] com
An analysis of the current survey data is available below.
The data was analyzed on 2023-04-09.
The rankings section should give a rough idea as to which treatments stand out as being promising treatments.
The section ranks all of the treatments (while ignoring those with very few data points). Then, specific types of treatments such as diet will be ranked against each another (while including treatments with very few data points). That analysis should help you understand:
The charts section provides breakdowns for individual treatments. If a treatment has very few data points, it may be grouped together with other similar treatments.
The Symptoms versus treatment responses section analyzes whether self-reported symptoms correlate with treatment response.
The Severity analysis section looks at whether or not treatment responses are different based on peak severity (during the worst month of illness), current severity (past 30 days), and recovery (current versus peak severity).
If you're interested in a particular treatment, search this webpage for the name of that treatment. On desktops, use Crtl+F to bring up your browser's search function.
Treatment names are usually chosen to be short and memorable:
Remember to search for brand names and short versions of a treatment's name. Usually there is a section where multiple names for a single treatment are listed- searching for any of the names will help you find the shortened memorable names.
All treatments are judged based on its average score. If all surveyees were to report mild improvement, then the average score would be 1.
For risk scoring, only the negative scores are considered. The maximum possible range is from 0 to -3.
The chart below is followed by a table showing the same data plus risk score and # of data points.
Treatments with more than 58 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | ['Pacing strategies'] | 1.43 | -0.01 | 175 |
2 | ['Brain retraining'] | 1.20 | -0.07 | 61 |
3 | ['Prayer'] | 1.18 | 0.00 | 143 |
4 | ['Anti inflammatory diet'] | 1.16 | -0.02 | 82 |
5 | ['LDN'] | 1.15 | -0.18 | 78 |
6 | ['Glutenfree diet'] | 1.14 | -0.03 | 187 |
7 | ['Low histamine diet'] | 1.11 | -0.03 | 196 |
8 | ['Avoiding exercise'] | 1.09 | -0.09 | 280 |
9 | ['HBOT <=1.5 ATA', 'HBOT >1.5 ATA'] | 0.95 | -0.31 | 75 |
10 | ['Meditation'] | 0.93 | -0.02 | 205 |
11 | ['Benzodiazepines'] | 0.87 | -0.25 | 95 |
12 | ['Ivermectin'] | 0.85 | -0.13 | 112 |
13 | ['Zyrtec'] | 0.79 | -0.14 | 154 |
14 | ['Pepcid'] | 0.78 | -0.17 | 134 |
15 | ['Magnesium'] | 0.76 | -0.04 | 327 |
16 | ['Intermittent fasting'] | 0.71 | -0.07 | 164 |
17 | ['Probiotics prebiotics'] | 0.67 | -0.08 | 231 |
18 | ['Statins', 'Red yeast rice'] | 0.64 | -0.25 | 75 |
19 | ['Plant based diet', 'Vegan diet'] | 0.61 | -0.12 | 116 |
20 | ['Melatonin'] | 0.60 | -0.14 | 204 |
21 | ['OMAD'] | 0.59 | -0.22 | 80 |
22 | ['B vitamins'] | 0.59 | -0.09 | 324 |
23 | ['Red light therapy'] | 0.58 | -0.10 | 59 |
24 | ['Beta blockers'] | 0.57 | -0.48 | 120 |
25 | ['Corticosteroids'] | 0.55 | -0.39 | 161 |
26 | ['Nigella sativa capsules'] | 0.54 | -0.03 | 63 |
27 | ['Vitamin D'] | 0.53 | -0.03 | 365 |
28 | ['NAC'] | 0.52 | -0.08 | 183 |
29 | ['Nigella sativa oil'] | 0.52 | -0.14 | 80 |
30 | ['Claritin'] | 0.51 | -0.19 | 132 |
31 | ['Vitamin C'] | 0.50 | -0.02 | 322 |
32 | ['Aspirin'] | 0.50 | -0.09 | 206 |
33 | ['IV vitamins'] | 0.50 | -0.16 | 92 |
34 | ['Acupuncture'] | 0.49 | -0.28 | 142 |
35 | ['CBT'] | 0.48 | -0.14 | 95 |
36 | ['Fish oil etc.'] | 0.48 | -0.03 | 221 |
37 | ['Quercetin'] | 0.48 | -0.11 | 243 |
38 | ['CBD THC'] | 0.48 | -0.21 | 151 |
39 | ['Allegra'] | 0.47 | -0.23 | 73 |
40 | ['Acrivastine'] | 0.47 | -0.10 | 59 |
41 | ['Zinc'] | 0.46 | -0.04 | 289 |
42 | ['K vitamins'] | 0.42 | -0.06 | 124 |
43 | ['ALA'] | 0.41 | -0.13 | 101 |
44 | ['Advil'] | 0.36 | -0.12 | 224 |
45 | ['Benadryl'] | 0.33 | -0.25 | 73 |
46 | ['Other NSAID'] | 0.30 | -0.16 | 123 |
47 | ['Pine needle tea'] | 0.28 | -0.13 | 69 |
48 | ['Tylenol'] | 0.27 | -0.08 | 191 |
49 | ['Multivitamin'] | 0.26 | -0.09 | 188 |
50 | ['Other pain relievers'] | 0.12 | -0.44 | 89 |
51 | ['SSRIs'] | 0.02 | -0.54 | 190 |
52 | ['Elavil', 'Doxepin', 'Pamelor', 'Clomipramine'] | -0.08 | -0.61 | 61 |
53 | ['Antibiotics'] | -0.09 | -0.49 | 152 |
54 | ['Light exercise'] | -0.51 | -0.98 | 302 |
55 | ['Graded exercise therapy'] | -1.08 | -1.40 | 78 |
56 | ['Intense exercise'] | -2.12 | -2.27 | 213 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Pacing strategies] | 1.43 | -0.01 | 175 |
2 | [Avoiding exercise] | 1.09 | -0.09 | 280 |
3 | [Light exercise] | -0.51 | -0.98 | 302 |
4 | [Graded exercise therapy] | -1.08 | -1.40 | 78 |
5 | [Intense exercise] | -2.12 | -2.27 | 213 |
Please note that the sample sizes for certain treatments are very small. As well, the data may be highly biased and may not be representative of how other people might respond to blood thinning drugs.
Tylenol (acetaminophen) is not considered to be a blood-thinning drug. It is included because it is a common alternative to other drugs on this list (Advil, Aspirin, etc.).
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Eliquis] | 1.86 | 0.00 | 14 |
2 | [Clopidogrel] | 1.54 | -0.04 | 24 |
3 | [HELP apheresis] | 1.36 | -0.36 | 11 |
4 | [Heparin] | 0.56 | -0.19 | 16 |
5 | [Aspirin] | 0.50 | -0.09 | 206 |
6 | [Advil] | 0.36 | -0.12 | 224 |
7 | [Other NSAID] | 0.30 | -0.16 | 123 |
8 | [Tylenol] | 0.27 | -0.08 | 191 |
9 | [Xarelto] | -0.25 | -0.25 | 4 |
Pacing strategies and HBOT (high ATA) are included as reference points.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Eliquis] | 1.86 | 0.00 | 14 |
2 | [Clopidogrel] | 1.54 | -0.04 | 24 |
3 | [Pacing strategies] | 1.43 | -0.01 | 175 |
4 | [HELP apheresis] | 1.36 | -0.36 | 11 |
5 | [HBOT >1.5 ATA] | 1.35 | -0.32 | 34 |
6 | [Low histamine diet] | 1.11 | -0.03 | 196 |
7 | [Maraviroc] | 1.08 | -0.50 | 12 |
8 | [Multiday fasting] | 1.04 | -0.33 | 27 |
9 | [IVIG] | 1.00 | -0.33 | 21 |
10 | [Benzodiazepines] | 0.87 | -0.25 | 95 |
11 | [24-48 hour fasting] | 0.79 | -0.31 | 52 |
12 | [Zyrtec] | 0.79 | -0.14 | 154 |
13 | [Pepcid] | 0.78 | -0.17 | 134 |
14 | [Intermittent fasting] | 0.71 | -0.07 | 164 |
15 | [Statins, Red yeast rice] | 0.64 | -0.25 | 75 |
16 | [HBOT <=1.5 ATA] | 0.61 | -0.29 | 41 |
17 | [OMAD] | 0.59 | -0.22 | 80 |
18 | [PLEX] | 0.57 | 0.00 | 7 |
19 | [Heparin] | 0.56 | -0.19 | 16 |
20 | [Corticosteroids] | 0.55 | -0.39 | 161 |
21 | [Aspirin] | 0.50 | -0.09 | 206 |
22 | [Quercetin] | 0.48 | -0.11 | 243 |
23 | [Advil] | 0.36 | -0.12 | 224 |
24 | [Other NSAID] | 0.30 | -0.16 | 123 |
25 | [Luteolin] | 0.21 | -0.10 | 29 |
26 | [Xarelto] | -0.25 | -0.25 | 4 |
Excludes anti-depressants, anti-microbials, etc.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Maraviroc] | 1.08 | -0.50 | 12 |
2 | [Opiates] | 0.96 | -0.20 | 46 |
3 | [Colchicine] | 0.66 | -0.45 | 53 |
4 | [Statins, Red yeast rice] | 0.64 | -0.25 | 75 |
5 | [Beta blockers] | 0.57 | -0.48 | 120 |
6 | [Other pain relievers] | 0.12 | -0.44 | 89 |
7 | [Antiseizure] | -0.17 | -0.87 | 23 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... | 0.04 | -0.52 | 147 |
2 | [Cymbalta, Effexor] | -0.07 | -0.58 | 43 |
3 | [Elavil, Doxepin, Pamelor, Clomipramine] | -0.08 | -0.61 | 61 |
4 | [Remeron, Seroquel, Wellbutrin] | -0.30 | -0.74 | 50 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Paxil] | 0.86 | -0.29 | 7 |
2 | [Fluvoxamine] | 0.49 | -0.42 | 45 |
3 | [Celexa] | 0.46 | -0.31 | 13 |
4 | [Seroquel] | 0.31 | -0.46 | 13 |
5 | [Effexor] | 0.23 | -0.38 | 13 |
6 | [Pamelor] | 0.22 | -0.67 | 9 |
7 | [Doxepin] | 0.00 | -0.67 | 6 |
8 | [Clomipramine] | 0.00 | 0.00 | 1 |
9 | [Prozac] | -0.10 | -0.52 | 21 |
10 | [Elavil] | -0.16 | -0.60 | 45 |
11 | [Antiseizure] | -0.17 | -0.87 | 23 |
12 | [Cymbalta] | -0.20 | -0.67 | 30 |
13 | [Wellbutrin] | -0.27 | -0.53 | 15 |
14 | [Zoloft] | -0.38 | -0.62 | 26 |
15 | [Lexapro] | -0.44 | -0.69 | 32 |
16 | [Vortioxetine] | -0.67 | -1.00 | 3 |
17 | [Remeron] | -0.68 | -1.05 | 22 |
While Quetiapine / Seroquel is often thought of as a TCA, it is also a H1 receptor antagonist. It is a dopamine, serotonin, and adrenergic antagonist, and a potent antihistamine with some anticholinergic properties.
DAO = Diamine Oxidase enzyme
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Rupatadine] | 1.60 | 0.00 | 5 |
2 | [Other antihistamines] | 1.22 | -0.06 | 18 |
3 | [Bilastine] | 1.00 | 0.00 | 4 |
4 | [Doxylamine] | 1.00 | 0.00 | 2 |
5 | [Hydroxyzine] | 0.88 | -0.12 | 25 |
6 | [Zyrtec] | 0.79 | -0.14 | 154 |
7 | [Pepcid] | 0.78 | -0.17 | 134 |
8 | [DAO] | 0.75 | -0.02 | 51 |
9 | [Clarinex] | 0.58 | -0.05 | 19 |
10 | [Claritin] | 0.51 | -0.19 | 132 |
11 | [Acrivastine] | 0.47 | -0.10 | 59 |
12 | [Allegra] | 0.47 | -0.23 | 73 |
13 | [Ketotifen] | 0.35 | -0.41 | 17 |
14 | [Benadryl] | 0.33 | -0.25 | 73 |
15 | [Seroquel] | 0.31 | -0.46 | 13 |
16 | [Xyzal] | 0.17 | -0.50 | 12 |
17 | [Ebastine] | 0.00 | 0.00 | 3 |
18 | [Seldane] | 0.00 | 0.00 | 1 |
19 | [Doxepin] | 0.00 | -0.67 | 6 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [LDN] | 1.15 | -0.18 | 78 |
2 | [Low histamine diet] | 1.11 | -0.03 | 196 |
3 | [Ambien] | 1.09 | -0.27 | 22 |
4 | [Benzodiazepines] | 0.87 | -0.25 | 95 |
5 | [Cromolyn] | 0.68 | -0.16 | 19 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Magnesium] | 0.76 | -0.04 | 327 |
2 | [Probiotics prebiotics] | 0.67 | -0.08 | 231 |
3 | [Melatonin] | 0.60 | -0.14 | 204 |
4 | [B vitamins] | 0.59 | -0.09 | 324 |
5 | [Nigella sativa capsules] | 0.54 | -0.03 | 63 |
6 | [Vitamin D] | 0.53 | -0.03 | 365 |
7 | [Nigella sativa oil] | 0.52 | -0.14 | 80 |
8 | [NAC] | 0.52 | -0.08 | 183 |
9 | [Vitamin C] | 0.50 | -0.02 | 322 |
10 | [Quercetin] | 0.48 | -0.11 | 243 |
11 | [CBD THC] | 0.48 | -0.21 | 151 |
12 | [Fish oil etc.] | 0.48 | -0.03 | 221 |
13 | [Zinc] | 0.46 | -0.04 | 289 |
14 | [K vitamins] | 0.42 | -0.06 | 124 |
15 | [ALA] | 0.41 | -0.13 | 101 |
16 | [Monolaurin] | 0.29 | -0.14 | 21 |
17 | [Pine needle tea] | 0.28 | -0.13 | 69 |
18 | [Multivitamin] | 0.26 | -0.09 | 188 |
19 | [Nigella sativa seed] | 0.25 | 0.00 | 16 |
20 | [Luteolin] | 0.21 | -0.10 | 29 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Other diet] | 1.41 | 0.00 | 32 |
2 | [Anti inflammatory diet] | 1.16 | -0.02 | 82 |
3 | [Glutenfree diet] | 1.14 | -0.03 | 187 |
4 | [Low histamine diet] | 1.11 | -0.03 | 196 |
5 | [Carnivore diet] | 0.92 | -0.16 | 25 |
6 | [AIP diet] | 0.85 | -0.15 | 26 |
7 | [Paleo diet] | 0.77 | -0.27 | 30 |
8 | [Plant based diet] | 0.72 | -0.07 | 76 |
9 | [Keto diet] | 0.70 | -0.27 | 33 |
10 | [Vegan diet] | 0.40 | -0.22 | 40 |
11 | [Wahls protocol] | 0.18 | -0.73 | 11 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Multiday fasting] | 1.04 | -0.33 | 27 |
2 | [24-48 hour fasting] | 0.79 | -0.31 | 52 |
3 | [Intermittent fasting] | 0.71 | -0.07 | 164 |
4 | [OMAD] | 0.59 | -0.22 | 80 |
5 | [Multiday juice fasting] | 0.50 | -0.50 | 10 |
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Brain retraining] | 1.20 | -0.07 | 61 |
2 | [Prayer] | 1.18 | 0.00 | 143 |
3 | [Meditation] | 0.93 | -0.02 | 205 |
4 | [EMDR] | 0.67 | -0.15 | 27 |
5 | [Infrared sauna] | 0.64 | -0.18 | 56 |
6 | [Red light therapy] | 0.58 | -0.10 | 59 |
7 | [Acupuncture] | 0.49 | -0.28 | 142 |
8 | [CBT] | 0.48 | -0.14 | 95 |
9 | [Traditional sauna] | 0.15 | -0.56 | 34 |
*This survey did not ask whether methylene blue was taken via IV or swallowed into the body.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Methylene blue] | 1.43 | 0.00 | 7 |
2 | [HELP apheresis] | 1.36 | -0.36 | 11 |
3 | [HBOT >1.5 ATA] | 1.35 | -0.32 | 34 |
4 | [IVIG] | 1.00 | -0.33 | 21 |
5 | [EBOO] | 0.78 | 0.00 | 9 |
6 | [SCIG] | 0.67 | 0.00 | 3 |
7 | [Inuspheresis] | 0.67 | 0.00 | 3 |
8 | [HBOT <=1.5 ATA] | 0.61 | -0.29 | 41 |
9 | [PLEX] | 0.57 | 0.00 | 7 |
10 | [Corticosteroids] | 0.55 | -0.39 | 161 |
11 | [Biologic] | 0.50 | 0.00 | 4 |
12 | [IV vitamins] | 0.50 | -0.16 | 92 |
13 | [IV ozone] | 0.45 | -0.21 | 33 |
14 | [DMARD] | 0.20 | -0.10 | 10 |
15 | [Methotextrate] | 0.00 | -0.14 | 7 |
Chronic Lyme treatments such as HBOT, methylene blue, IV ozone, and monolaurin are included. Amphotericin, Canesten, Econazole, etc. are anti-fungals.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Methylene blue] | 1.43 | 0.00 | 7 |
2 | [HBOT >1.5 ATA] | 1.35 | -0.32 | 34 |
3 | [Monoclonals] | 1.06 | -0.12 | 17 |
4 | [Tamiflu] | 1.00 | 0.00 | 1 |
5 | [Plaquenil] | 0.89 | -0.22 | 36 |
6 | [Ivermectin] | 0.85 | -0.13 | 112 |
7 | [Molnupiravir] | 0.75 | 0.00 | 4 |
8 | [Paxlovid] | 0.64 | -0.43 | 14 |
9 | [HBOT <=1.5 ATA] | 0.61 | -0.29 | 41 |
10 | [Aciclovir, Famciclovir, Valtrex, Valcyte] | 0.57 | -0.09 | 53 |
11 | [Nigella sativa capsules] | 0.54 | -0.03 | 63 |
12 | [Nigella sativa oil] | 0.52 | -0.14 | 80 |
13 | [Amphotericin, Canesten, Econazole, Fluconazol... | 0.51 | -0.22 | 37 |
14 | [Alinia] | 0.50 | 0.00 | 2 |
15 | [IV ozone] | 0.45 | -0.21 | 33 |
16 | [Monolaurin] | 0.29 | -0.14 | 21 |
17 | [Nigella sativa seed] | 0.25 | 0.00 | 16 |
18 | [Tetracyclines, Flox antibiotics, Penicillins,... | -0.09 | -0.49 | 152 |
'Antibiotic unknown type' = The surveyee doesn't know what antibiotic they took.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Aminoglycosides] | 1.50 | 0.00 | 2 |
2 | [Sulfonamides] | 1.00 | 0.00 | 1 |
3 | [Antibiotic unknown type] | 0.80 | -0.13 | 15 |
4 | [Macrolides] | 0.16 | -0.32 | 25 |
5 | [Tetracyclines] | 0.13 | -0.17 | 30 |
6 | [Metronidazole] | 0.00 | -1.00 | 3 |
7 | [Cephalosporins] | -0.10 | -0.60 | 10 |
8 | [Other antibiotic] | -0.44 | -0.62 | 16 |
9 | [Penicillins] | -0.48 | -0.67 | 27 |
10 | [Flox antibiotics] | -0.62 | -1.06 | 16 |
11 | [Clindamycin] | -0.75 | -0.75 | 4 |
12 | [Nitrofurantoin] | -1.00 | -1.00 | 3 |
Surveyees may have answered in an acute COVID-19 context or outside of an acute COVID-19 context.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Monoclonals] | 1.06 | -0.12 | 17 |
2 | [Vedicinals9] | 1.00 | -0.21 | 14 |
3 | [Plaquenil] | 0.89 | -0.22 | 36 |
4 | [Ivermectin] | 0.85 | -0.13 | 112 |
5 | [Molnupiravir] | 0.75 | 0.00 | 4 |
6 | [Paxlovid] | 0.64 | -0.43 | 14 |
7 | [Melatonin] | 0.60 | -0.14 | 204 |
8 | [Vitamin D] | 0.53 | -0.03 | 365 |
9 | [Tollovid] | 0.43 | -0.14 | 14 |
These charts show how surveyees reported their experiences with particular treatments. If the treatment had very few data points, they are usually grouped together with other similar treatments to provide combined data.
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 8.5 % | 30 out of 355 total patients Long COVID 15.1 % | 13 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 5.9 % | 21 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.7 % | 6 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 9.0 % | 32 out of 355 total patients Long COVID 12.8 % | 11 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.1 % | 4 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 39.2 % | 139 out of 355 total patients Long COVID 47.7 % | 41 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 42.5 % | 151 out of 355 total patients Long COVID 51.2 % | 44 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 47.3 % | 168 out of 355 total patients Long COVID 48.8 % | 42 out of 86 total patients ME/CFS 50.0 % | 14 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 25.9 % | 92 out of 355 total patients Long COVID 23.3 % | 20 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Heparin, Eliquis / Apixiban, Clopidogrel, Xarelto, Sulodexide
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.4 % | 12 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.0 % | 7 out of 355 total patients Long COVID 7.0 % | 6 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.8 % | 10 out of 355 total patients Long COVID 14.0 % | 12 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.8 % | 17 out of 355 total patients Long COVID 2.3 % | 2 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.8 % | 3 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Data on PLEX is also available from React19 Survey #3:
1 surveyee reported mild improvement while 1 reported significant worsening.
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.7 % | 6 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.6 % | 2 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.6 % | 2 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 7.0 % | 25 out of 355 total patients Long COVID 5.8 % | 5 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 18.0 % | 64 out of 355 total patients Long COVID 23.3 % | 20 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.0 % | 7 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.7 % | 6 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
HBOT <=1.5 ATA, HBOT >1.5 ATA
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 7.6 % | 27 out of 355 total patients Long COVID 14.0 % | 12 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 6.2 % | 22 out of 355 total patients Long COVID 14.0 % | 12 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 36.6 % | 130 out of 355 total patients Long COVID 31.4 % | 27 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Do people with lower severity respond better to corticosteroids? Current severity 4 or less | Average (mean) score: 0.77 | n = 60 Current severity 5 or more | Average (mean) score: 0.42 | n = 77
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.7 % | 6 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.1 % | 4 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.3 % | 8 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 22.8 % | 81 out of 355 total patients Long COVID 31.4 % | 27 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 7.3 % | 26 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.0 % | 0 out of 355 total patients Long COVID 2.3 % | 2 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.5 % | 16 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.0 % | 0 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.2 % | 15 out of 355 total patients Long COVID 5.8 % | 5 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.6 % | 2 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
(Not enough data points for Ribavirin or Tamiflu)
Used ribavirin: 0 Used Tamiflu: 1
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.4 % | 5 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 0.6 % | 2 out of 355 total patients Long COVID 2.3 % | 2 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.7 % | 13 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.4 % | 5 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 1.4 % | 5 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 9.9 % | 35 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 20.8 % | 74 out of 355 total patients Long COVID 15.1 % | 13 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 20.3 % | 72 out of 355 total patients Long COVID 18.6 % | 16 out of 86 total patients ME/CFS 25.0 % | 7 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.9 % | 14 out of 355 total patients Long COVID 8.1 % | 7 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 5.1 % | 18 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 25.4 % | 90 out of 355 total patients Long COVID 27.9 % | 24 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.0 % | 46 out of 355 total patients Long COVID 7.0 % | 6 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.5 % | 9 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 0.0 % | 0 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.5 % | 48 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 30.1 % | 107 out of 355 total patients Long COVID 46.5 % | 40 out of 86 total patients ME/CFS 25.0 % | 7 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 15.5 % | 55 out of 355 total patients Long COVID 17.4 % | 15 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 26.5 % | 94 out of 355 total patients Long COVID 43.0 % | 37 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.8 % | 49 out of 355 total patients Long COVID 22.1 % | 19 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 27.9 % | 99 out of 355 total patients Long COVID 30.2 % | 26 out of 86 total patients ME/CFS 25.0 % | 7 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.8 % | 10 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.3 % | 8 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 10.7 % | 38 out of 355 total patients Long COVID 11.6 % | 10 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Note: Some anti-histamine drugs (e.g. Doxepin, Seroquel) are listed under anti-depressants above.
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.7 % | 13 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.7 % | 13 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.5 % | 48 out of 355 total patients Long COVID 23.3 % | 20 out of 86 total patients ME/CFS 35.7 % | 10 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 18.3 % | 65 out of 355 total patients Long COVID 10.5 % | 9 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.2 % | 47 out of 355 total patients Long COVID 11.6 % | 10 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.1 % | 11 out of 355 total patients Long COVID 2.3 % | 2 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 23.9 % | 85 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 31.3 % | 111 out of 355 total patients Long COVID 33.7 % | 29 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 45.1 % | 160 out of 355 total patients Long COVID 47.7 % | 41 out of 86 total patients ME/CFS 71.4 % | 20 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.5 % | 16 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 40.6 % | 144 out of 355 total patients Long COVID 51.2 % | 44 out of 86 total patients ME/CFS 57.1 % | 16 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 3.1 % | 11 out of 355 total patients Long COVID 5.8 % | 5 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 38.9 % | 138 out of 355 total patients Long COVID 39.5 % | 34 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 17.7 % | 63 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 44.8 % | 159 out of 355 total patients Long COVID 64.0 % | 55 out of 86 total patients ME/CFS 60.7 % | 17 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 50.1 % | 178 out of 355 total patients Long COVID 59.3 % | 51 out of 86 total patients ME/CFS 50.0 % | 14 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 67.6 % | 240 out of 355 total patients Long COVID 70.9 % | 61 out of 86 total patients ME/CFS 82.1 % | 23 out of 28 total patients
*Intravenous vitamin C is listed elsewhere as part of "IV vitamins".
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 66.8 % | 237 out of 355 total patients Long COVID 73.3 % | 63 out of 86 total patients ME/CFS 78.6 % | 22 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 76.9 % | 273 out of 355 total patients Long COVID 82.6 % | 71 out of 86 total patients ME/CFS 75.0 % | 21 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 26.5 % | 94 out of 355 total patients Long COVID 20.9 % | 18 out of 86 total patients ME/CFS 42.9 % | 12 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 38.6 % | 137 out of 355 total patients Long COVID 45.3 % | 39 out of 86 total patients ME/CFS 42.9 % | 12 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 67.9 % | 241 out of 355 total patients Long COVID 73.3 % | 63 out of 86 total patients ME/CFS 82.1 % | 23 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 60.8 % | 216 out of 355 total patients Long COVID 64.0 % | 55 out of 86 total patients ME/CFS 64.3 % | 18 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 42.0 % | 149 out of 355 total patients Long COVID 46.5 % | 40 out of 86 total patients ME/CFS 25.0 % | 7 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 40.0 % | 142 out of 355 total patients Long COVID 39.5 % | 34 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 15.5 % | 55 out of 355 total patients Long COVID 15.1 % | 13 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 8.2 % | 29 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.2 % | 15 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.8 % | 10 out of 355 total patients Long COVID 0.0 % | 0 out of 86 total patients ME/CFS 3.6 % | 1 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 4.8 % | 17 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 6.8 % | 24 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 17.7 % | 63 out of 355 total patients Long COVID 17.4 % | 15 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 5.6 % | 20 out of 355 total patients Long COVID 4.7 % | 4 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 15.5 % | 55 out of 355 total patients Long COVID 20.9 % | 18 out of 86 total patients ME/CFS 25.0 % | 7 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 36.1 % | 128 out of 355 total patients Long COVID 25.6 % | 22 out of 86 total patients ME/CFS 50.0 % | 14 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 10.7 % | 38 out of 355 total patients Long COVID 9.3 % | 8 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 5.6 % | 20 out of 355 total patients Long COVID 3.5 % | 3 out of 86 total patients ME/CFS 14.3 % | 4 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 2.0 % | 7 out of 355 total patients Long COVID 1.2 % | 1 out of 86 total patients ME/CFS 7.1 % | 2 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 45.1 % | 160 out of 355 total patients Long COVID 46.5 % | 40 out of 86 total patients ME/CFS 46.4 % | 13 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 62.8 % | 223 out of 355 total patients Long COVID 67.4 % | 58 out of 86 total patients ME/CFS 75.0 % | 21 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.8 % | 49 out of 355 total patients Long COVID 26.7 % | 23 out of 86 total patients ME/CFS 21.4 % | 6 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 55.2 % | 196 out of 355 total patients Long COVID 70.9 % | 61 out of 86 total patients ME/CFS 82.1 % | 23 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 28.2 % | 100 out of 355 total patients Long COVID 66.3 % | 57 out of 86 total patients ME/CFS 64.3 % | 18 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 18.6 % | 66 out of 355 total patients Long COVID 22.1 % | 19 out of 86 total patients ME/CFS 35.7 % | 10 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 32.4 % | 115 out of 355 total patients Long COVID 23.3 % | 20 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 40.8 % | 145 out of 355 total patients Long COVID 53.5 % | 46 out of 86 total patients ME/CFS 50.0 % | 14 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 5.4 % | 19 out of 355 total patients Long COVID 5.8 % | 5 out of 86 total patients ME/CFS 10.7 % | 3 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 11.0 % | 39 out of 355 total patients Long COVID 16.3 % | 14 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 32.1 % | 114 out of 355 total patients Long COVID 23.3 % | 20 out of 86 total patients ME/CFS 28.6 % | 8 out of 28 total patients
*Note: Some people lose their ability to tolerate heat (e.g. hot showers) after they develop chronic illness. What works for somebody else may not be appropriate for you.
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 7.6 % | 27 out of 355 total patients Long COVID 2.3 % | 2 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 11.0 % | 39 out of 355 total patients Long COVID 7.0 % | 6 out of 86 total patients ME/CFS 39.3 % | 11 out of 28 total patients
Percentage of patients in each chronic illness group who tried this intervention: Vaccine injured 13.5 % | 48 out of 355 total patients Long COVID 7.0 % | 6 out of 86 total patients ME/CFS 17.9 % | 5 out of 28 total patients
Number of treatments tried versus biological sex: Female: 21.1 Male: 21.2
Age distribution in Long COVID surveyees
Age distribution in COVID vaccine injured surveyees
71.8% of surveyees indicated that they were biologically female.
The severity scale is as follows:
Surveyees reported 'peak' severity from the worst month of illness.
The survey asked respondents to rate their symptoms on a Likert scale.
These analyses look at possible connections between symptoms and treatment responses.
Those with severe food intolerances are more likely to report significant improvement from a low-histamine or gluten-free diet.
Food intolerances 2 or less | Average (mean) score: 0.64 | n = 96 Food intolerances 3-4 | Average (mean) score: 1.55 | n = 95
Food intolerances 2 or less | Average (mean) score: 0.79 | n = 94 Food intolerances 3-4 | Average (mean) score: 1.5 | n = 90
Food intolerances versus anti-histamines
Food intolerances 2 or less | Average (mean) score: 0.48 | n = 91 Food intolerances 3-4 | Average (mean) score: 1.2 | n = 59
It is thought that DAO enzymes will benefit those with a strong histamine intolerance. However, reported outcomes do not seem to correlate heavily with self-reported food intolerance.
Food intolerances 2 or less | Average (mean) score: 0.79 | n = 19 Food intolerances 3-4 | Average (mean) score: 0.7 | n = 30
Those with the most severe food intolerances may respond differently to benzodiazepines, a drug often prescribed for Mast Cell Activation Syndrome (MCAS). Food intolerances are associated with MCAS.
Food intolerances 2 or less | Average (mean) score: 0.95 | n = 66 Food intolerances 3-4 | Average (mean) score: 0.84 | n = 25
Food intolerances versus low-dose naltrexone (LDN)
Food intolerances 2 or less | Average (mean) score: 0.96 | n = 46 Food intolerances 3-4 | Average (mean) score: 1.39 | n = 31
HBOT >1.5 ATA versus food intolerances. Note: low sample size.
Food intolerances 2 or less | Average (mean) score: 0.56 | n = 16 Food intolerances 3-4 | Average (mean) score: 1.94 | n = 16
Food intolerances versus OMAD
Food intolerances 2 or less | Average (mean) score: 0.31 | n = 49 Food intolerances 3-4 | Average (mean) score: 1.03 | n = 30
Food intolerances versus prescription blood thinners
Do those without blood clotting/bleeding disorders report better outcomes from blood thinning drugs?!
No clotting disorder | Average (mean) score: 1.26 | n = 23 Reported clotting disorder | Average (mean) score: 1.2 | n = 35
No bleeding disorder | Average (mean) score: 1.33 | n = 39 Reported bleeding disorder | Average (mean) score: 1.06 | n = 18
Peak pain 2 or lower | Average (mean) score: 0.0 | n = 10 Peak pain 3 or higher | Average (mean) score: 1.22 | n = 36
Peak pain 2 or lower | Average (mean) score: 0.31 | n = 16 Peak pain 3 or higher | Average (mean) score: 0.13 | n = 70
Those who reported the most severe depression in their worst month of illness tended to report a higher rate of significant improvement.
No depression | Average (mean) score: -0.1 | n = 29 Peak depression 0-2 | Average (mean) score: -0.13 | n = 104 Peak depression 3-4 | Average (mean) score: 0.02 | n = 158
SSRIs may be slightly more effective in those who report the most severe brain fog, memory problems, or cognitive difficulties???
However, SSRIs were among the lowest-rated treatments in this survey.
No cognitive difficulties | Average (mean) score: -0.14 | n = 14 Cognitive difficulties 0-3 | Average (mean) score: 0.03 | n = 101 Cognitive difficulties 4 | Average (mean) score: 0.03 | n = 69
No cognitive difficulties | Average (mean) score: 0.2 | n = 20 Cognitive difficulties 0-3 | Average (mean) score: -0.06 | n = 157 Cognitive difficulties 4 | Average (mean) score: -0.06 | n = 115
No cognitive difficulties | Average (mean) score: 0.71 | n = 7 Cognitive difficulties 0-3 | Average (mean) score: 0.66 | n = 59 Cognitive difficulties 4 | Average (mean) score: 1.07 | n = 43
Benzodiazepines are sometimes prescribed for sleep issues.
(Ambien is also prescribed but there is too little data to perform a useful analysis.)
Sleep issues 3 or less | Average (mean) score: 0.96 | n = 57 Sleep issues 4 | Average (mean) score: 0.7 | n = 33
No POTS or feeling faint when standing up | Average (mean) score: 1.67 | n = 9 POTS 0-3 | Average (mean) score: 0.35 | n = 68 POTS 4 | Average (mean) score: 0.69 | n = 39
No POTS or feeling faint when standing up | Average (mean) score: 0.75 | n = 28 POTS 0-3 | Average (mean) score: 0.39 | n = 83 POTS 4 | Average (mean) score: 0.7 | n = 44
The severity score is the combination of the following:
The combined score can range from -1 to 9.
High recovery = An improvement of 2.0 or more
Low recovery = An improvement of 1.0 or less (includes worsening)
HBOT may be an outlier as there is a large difference between the high and low recovery groups.
The chart below compares those with high levels of recovery versus those who little or no recovery. For the most part, both groups have tried the same treatments.
The treatments below were chosen because surveyees had very different experiences with those treatments.
Percentage with current symptom suffering rated 'worst suffering imaginable': 27.500000000000004 % | 115 out of 418 Percentage who cannot currently walk more than 1 minute: 4.8 % | 20 out of 421 Percentage who cannot work their old job: 40.400000000000006 % | 169 out of 418
In the chart below, there are 2 bars in between the x-axis labels 0" and "2". These bars are for 0 and 1. The labels on the x-axis correspond to the bar to the upper right of it.
The numbers inside each box represent the number of people.
Some surveyees increased along the severity scale due to a worsening of their work ability. This may suggest that work ability is not that important to these surveyees because they did not rate the past 30 days as being the worst month of their illness.
Number of people where severity score is available: 391 Questions for current severity were added later after some initial responses were collected. Some people are missing severity scores because they didn't know how to answer the question about walking ability or because their worst month overlapped with the past 30 days.
Severity score during worst month of illness Long COVID 7.0 | n = 86 ME/CFS 7.4 | n = 28 Vaccine injured 6.5 | n = 355 Severity score for past 30 days Long COVID 5.1 | n = 86 ME/CFS 5.7 | n = 28 Vaccine injured 4.5 | n = 355 Walking score for past 30 days (higher = greater impairment to walking ability) Long COVID 0.2 | n = 86 ME/CFS 0.6 | n = 28 Vaccine injured 0.2 | n = 355 Working score for past 30 days (higher = greater impairment to working ability) Long COVID 2.1 | n = 86 ME/CFS 2.3 | n = 28 Vaccine injured 1.6 | n = 355 Self-reported suffering for past 30 days (4 = greatest suffering imaginable) Long COVID 2.7 | n = 86 ME/CFS 2.8 | n = 28 Vaccine injured 2.7 | n = 355
Recovery, as measured by severity during worst month minus severity during the past 30 days
Severity during worst month of illness
Surprisingly, "Other pain relievers" ranked near the bottom of the list.
Pain severity from the worst month of illness was used.
Opiates were included but the sample size is small.
Number of data points for Opiates - 36 from the group (pain is 3/4 on 0-4 scale) Number of data points for Other pain relievers - 70 from the group (pain is 3/4 on 0-4 scale) Number of data points for Elavil - 34 from the group (pain is 3/4 on 0-4 scale) Number of data points for Doxepin - 5 from the group (pain is 3/4 on 0-4 scale) Number of data points for CBD THC - 88 from the group (pain is 3/4 on 0-4 scale) Number of data points for Opiates - 10 from the group (pain 2 or less) Number of data points for Other pain relievers - 16 from the group (pain 2 or less) Number of data points for Elavil - 9 from the group (pain 2 or less) Number of data points for Doxepin - 1 from the group (pain 2 or less) Number of data points for CBD THC - 61 from the group (pain 2 or less)
Severity from the worst month of illness was used.
Number of data points for Other antihistamines - 7 from the group (pain is 3/4 on 0-4 scale) Number of data points for Hydroxyzine - 10 from the group (pain is 3/4 on 0-4 scale) Number of data points for DAO - 30 from the group (pain is 3/4 on 0-4 scale) Number of data points for Clarinex - 9 from the group (pain is 3/4 on 0-4 scale) Number of data points for Acrivastine - 25 from the group (pain is 3/4 on 0-4 scale) Number of data points for Carnivore diet - 11 from the group (pain is 3/4 on 0-4 scale) Number of data points for Benzodiazepines - 25 from the group (pain is 3/4 on 0-4 scale) Number of data points for LDN - 31 from the group (pain is 3/4 on 0-4 scale) Number of data points for Luteolin - 15 from the group (pain is 3/4 on 0-4 scale) Number of data points for Cromolyn - 13 from the group (pain is 3/4 on 0-4 scale) Number of data points for Other antihistamines - 10 from the group (food intolerances 2 or less) Number of data points for Hydroxyzine - 14 from the group (food intolerances 2 or less) Number of data points for DAO - 19 from the group (food intolerances 2 or less) Number of data points for Clarinex - 10 from the group (food intolerances 2 or less) Number of data points for Acrivastine - 33 from the group (food intolerances 2 or less) Number of data points for Carnivore diet - 13 from the group (food intolerances 2 or less) Number of data points for Benzodiazepines - 66 from the group (food intolerances 2 or less) Number of data points for LDN - 46 from the group (food intolerances 2 or less) Number of data points for Luteolin - 14 from the group (food intolerances 2 or less) Number of data points for Cromolyn - 5 from the group (food intolerances 2 or less)
POTS = Postural Orthostatic Tachycardia Syndrome
OI = Orthostatic Intolerance
Severity from the worst month of illness was used.
Number of data points for Colchicine - 26 from the group (POTS OI is 3/4 on 0-4 scale) Number of data points for Colchicine - 23 from the group (POTS OI 2 or less)
Severity from the worst month of illness was used.
Number of data points for Ivermectin - 78 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Fluvoxamine - 30 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Benzodiazepines - 57 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Prozac - 14 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Ivermectin - 31 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Fluvoxamine - 12 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Benzodiazepines - 34 from the group (cognitive difficulties is 3/4 on 0-4 scale) Number of data points for Prozac - 7 from the group (cognitive difficulties is 3/4 on 0-4 scale)
Severity from the worst month of illness was used.
Number of data points for Benzodiazepines - 56 from the group (sleep issues are 3/4 on 0-4 scale) Number of data points for Ambien - 15 from the group (sleep issues are 3/4 on 0-4 scale) Number of data points for Benzodiazepines - 34 from the group (sleep issues 2 or less) Number of data points for Ambien - 6 from the group (sleep issues 2 or less)
Severity from the worst month of illness was used.
PLEASE NOTE: The sample sizes are VERY SMALL for this analysis. You should assume that the chart below is highly unreliable.
Severity from the worst month of illness was used.
Severity from the worst month of illness was used.
Loratadine (Claritin), fexofenadine (Allegra), cetirizine (Zyrtec, Benadryl Allergy One a Day Relief 🇬🇧), levocetirizine (Xyzal) and acrivastine (Benadryl Allergy Relief 🇬🇧) are H1 blockers that are sold over-the-counter in many countries.
Responders are defined as surveyees who answered either significant or mild improvement. The chart below compares pairings of some popular anti-histamines. Each row represents a group of people who failed a particular treatment/intervention (or reported that the effect was unclear). Each column represents the chances of responding to that particular intervention.
The bracketed numbers (1234) indicate the total number of people who did not respond to the treatment/intervention ('failed').
Zyrtec | Claritin | Allegra | Acrivastine | Pepcid (H2 blocker) | |
---|---|---|---|---|---|
Zyrtec failed | 13.5% (37) | 18.8% (16) | 13.3% (15) | 26.7% (30) | |
Claritin failed | 25.6% (43) | 8.7% (23) | 17.6% (17) | 25.7% (35) | |
Allegra failed | 35.0% (20) | 12.5% (24) | 14.3% (7) | 19.0% (21) | |
Acrivastine failed | 23.5% (17) | 6.7% (15) | 14.3% (7) | 16.7% (12) | |
Pepcid (H2 blocker) failed | 26.7% (30) | 7.1% (28) | 15.0% (20) | 33.3% (15) |
7 diets compared
Low histamine diet | Glutenfree diet | Plant based diet | Vegan diet | Carnivore diet | Keto diet | Anti inflammatory diet | |
---|---|---|---|---|---|---|---|
Low histamine diet failed | 36.4% (44) | 23.5% (17) | 11.1% (9) | 45.5% (11) | 50.0% (6) | 30.8% (13) | |
Glutenfree diet failed | 22.2% (36) | 11.8% (17) | 16.7% (12) | 27.3% (11) | 50.0% (6) | 16.7% (12) | |
Plant based diet failed | 23.5% (17) | 25.0% (20) | 0.0% (15) | 14.3% (7) | 0.0% (3) | 11.1% (9) | |
Vegan diet failed | 38.5% (13) | 41.2% (17) | 6.2% (16) | 42.9% (7) | 0.0% (3) | 22.2% (9) | |
Carnivore diet failed | 25.0% (8) | 11.1% (9) | 14.3% (7) | 20.0% (5) | 33.3% (3) | 50.0% (2) | |
Keto diet failed | 50.0% (6) | 50.0% (6) | 0.0% (3) | 0.0% (3) | 33.3% (3) | 25.0% (8) | |
Anti inflammatory diet failed | 10.0% (10) | 23.1% (13) | 0.0% (8) | 0.0% (7) | 66.7% (3) | 0.0% (6) |
All diets compared
Low histamine diet | Glutenfree diet | Plant based diet | Vegan diet | AIP diet | Wahls protocol | Paleo diet | Carnivore diet | Keto diet | Anti inflammatory diet | Other diet | |
---|---|---|---|---|---|---|---|---|---|---|---|
Low histamine diet failed | 36.4% (44) | 23.5% (17) | 11.1% (9) | 12.5% (8) | 0.0% (4) | 50.0% (6) | 45.5% (11) | 50.0% (6) | 30.8% (13) | 50.0% (4) | |
Glutenfree diet failed | 22.2% (36) | 11.8% (17) | 16.7% (12) | 14.3% (7) | 0.0% (3) | 40.0% (5) | 27.3% (11) | 50.0% (6) | 16.7% (12) | 33.3% (3) | |
Plant based diet failed | 23.5% (17) | 25.0% (20) | 0.0% (15) | 14.3% (7) | 0.0% (4) | 20.0% (5) | 14.3% (7) | 0.0% (3) | 11.1% (9) | 50.0% (6) | |
Vegan diet failed | 38.5% (13) | 41.2% (17) | 6.2% (16) | 14.3% (7) | 0.0% (4) | 57.1% (7) | 42.9% (7) | 0.0% (3) | 22.2% (9) | 40.0% (5) | |
AIP diet failed | 12.5% (8) | 25.0% (8) | 0.0% (6) | 0.0% (6) | 0.0% (5) | 0.0% (5) | 25.0% (4) | 0.0% (4) | 0.0% (5) | 0.0% (2) | |
Wahls protocol failed | 42.9% (7) | 50.0% (6) | 20.0% (5) | 20.0% (5) | 16.7% (6) | 0.0% (4) | 50.0% (2) | 33.3% (3) | 25.0% (4) | 0.0% (2) | |
Paleo diet failed | 40.0% (5) | 50.0% (6) | 20.0% (5) | 25.0% (4) | 0.0% (5) | 0.0% (4) | 25.0% (4) | 20.0% (5) | 20.0% (5) | 0.0% (2) | |
Carnivore diet failed | 25.0% (8) | 11.1% (9) | 14.3% (7) | 20.0% (5) | 0.0% (3) | 0.0% (1) | 0.0% (3) | 33.3% (3) | 50.0% (2) | 100.0% (1) | |
Keto diet failed | 50.0% (6) | 50.0% (6) | 0.0% (3) | 0.0% (3) | 0.0% (4) | 0.0% (2) | 0.0% (4) | 33.3% (3) | 25.0% (8) | 25.0% (4) | |
Anti inflammatory diet failed | 10.0% (10) | 23.1% (13) | 0.0% (8) | 0.0% (7) | 0.0% (5) | 0.0% (3) | 33.3% (6) | 66.7% (3) | 0.0% (6) | 25.0% (4) | |
Other diet failed | 50.0% (4) | 33.3% (3) | 0.0% (3) | 0.0% (3) | 0.0% (2) | 0.0% (2) | 0.0% (2) | 100.0% (1) | 0.0% (3) | 0.0% (3) |
These surveyees may be reporting slightly lower recovery (than those who reported negative outcomes from intense exericse). (Results may not necessarily be statistically significant.)
Reported improvement or not much benefit/harm from intense exercise: 34 Exercise responders peak sev: 5.8 Exercise responders curr sev: 4.0 Improvement: 1.8 Reported worsening from exercise: 179 Not exercise responders peak sev 6.8 Not exercise responders curr sev 4.7 Improvement: 2.1
What treatments seemed to work well in the non-responders?
Treatment rankings for ivermectin non-responders
Treatments with more than 12 data points | Score | Risk score | # of data points (out of 52 surveyees) | |
---|---|---|---|---|
1 | [Pacing strategies] | 1.32 | 0.00 | 19 |
2 | [Heparin, Eliquis, Clopidogrel, Xarelto, Sulod... | 1.12 | 0.00 | 17 |
3 | [Prayer] | 1.06 | 0.00 | 17 |
4 | [Low histamine diet] | 0.96 | -0.04 | 28 |
5 | [Benzodiazepines] | 0.94 | -0.19 | 16 |
6 | [Glutenfree diet] | 0.88 | 0.00 | 33 |
7 | [Pepcid] | 0.73 | -0.13 | 30 |
8 | [Avoiding exercise] | 0.67 | -0.11 | 27 |
9 | [Probiotics prebiotics] | 0.57 | 0.00 | 40 |
10 | [HBOT <=1.5 ATA, HBOT >1.5 ATA] | 0.57 | -0.33 | 21 |
11 | [Beta blockers] | 0.55 | -0.41 | 22 |
12 | [Plant based diet, Vegan diet] | 0.54 | -0.08 | 13 |
13 | [Meditation] | 0.52 | -0.04 | 25 |
14 | [Zyrtec] | 0.48 | -0.15 | 27 |
15 | [Benadryl] | 0.47 | -0.20 | 15 |
16 | [Intermittent fasting] | 0.46 | -0.04 | 24 |
17 | [LDN] | 0.43 | -0.10 | 21 |
18 | [Melatonin] | 0.42 | -0.05 | 40 |
19 | [Claritin] | 0.39 | -0.17 | 18 |
20 | [Statins, Red yeast rice] | 0.38 | 0.00 | 16 |
21 | [Infrared sauna] | 0.36 | -0.14 | 14 |
22 | [Corticosteroids] | 0.36 | -0.32 | 28 |
23 | [Magnesium] | 0.35 | -0.06 | 48 |
24 | [Allegra] | 0.31 | -0.19 | 16 |
25 | [Aspirin] | 0.29 | -0.07 | 41 |
26 | [Quercetin] | 0.26 | -0.02 | 43 |
27 | [Acupuncture] | 0.25 | -0.36 | 28 |
28 | [Vitamin C] | 0.25 | 0.00 | 44 |
29 | [B vitamins] | 0.23 | -0.05 | 44 |
30 | [Other NSAID] | 0.21 | -0.21 | 19 |
31 | [Tylenol] | 0.21 | -0.11 | 19 |
32 | [NAC] | 0.20 | -0.06 | 35 |
33 | [Vitamin D] | 0.19 | 0.00 | 48 |
34 | [Fish oil etc.] | 0.19 | 0.00 | 37 |
35 | [CBT] | 0.14 | 0.00 | 14 |
36 | [Advil] | 0.11 | -0.21 | 28 |
37 | [CBD THC] | 0.08 | -0.42 | 24 |
38 | [Nigella sativa capsules] | 0.06 | -0.06 | 16 |
39 | [Zinc] | 0.04 | -0.13 | 45 |
40 | [Multivitamin] | 0.00 | -0.12 | 24 |
41 | [K vitamins] | -0.04 | -0.13 | 23 |
42 | [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... | -0.06 | -0.49 | 35 |
43 | [Tetracyclines, Flox antibiotics, Penicillins,... | -0.07 | -0.38 | 29 |
44 | [Pine needle tea] | -0.07 | -0.27 | 15 |
45 | [ALA] | -0.15 | -0.23 | 13 |
46 | [IV vitamins] | -0.24 | -0.33 | 21 |
47 | [Ivermectin] | -0.29 | -0.29 | 52 |
48 | [Light exercise] | -1.12 | -1.36 | 33 |
49 | [Graded exercise therapy] | -1.77 | -2.00 | 13 |
50 | [Intense exercise] | -2.20 | -2.28 | 25 |
Failure is not the same as a non-responder. Worsening/failure is defined as somebody who reported worsening; it does NOT include 'unsure' and 'not much benefit/harm'
Note that the sample sizes are fairly small, so this analysis is likely unreliable.
Data from surveyees who tried both high and low ATA HBOT:
HBOT <=1.5 ATA | HBOT >1.5 ATA | Difference? | |
---|---|---|---|
1 | Mild improvement | Mild improvement | |
2 | Mild improvement | Significant improvement | Mild improvement | Significant improvement |
3 | Mild improvement | Mild improvement | |
4 | Mild improvement | Mild improvement | |
5 | Mild improvement | Mild improvement | |
6 | Not much benefit/harm | Significant improvement | Not much benefit/harm | Significant improvement |
7 | Not much benefit/harm | Significant worsening | Not much benefit/harm | Significant worsening |
8 | Not much benefit/harm | Not much benefit/harm | |
9 | Significant improvement | Significant improvement | |
10 | Significant improvement | Significant improvement | |
11 | Significant improvement | Significant improvement | |
12 | Significant worsening | Significant worsening |
It seems that those who try only low ATA HBOT tend to rate treatments more favorably than people who try only high ATA HBOT.
This bias might even understate the difference in outcomes between high and low ATA HBOT.
Treatments with more than 9 data points | Score | Risk score | # of data points (out of 22 surveyees) | |
---|---|---|---|---|
1 | ['HBOT <=1.5 ATA', 'HBOT >1.5 ATA'] | 1.50 | -0.23 | 22 |
2 | ['Meditation'] | 1.31 | 0.00 | 16 |
3 | ['Glutenfree diet'] | 1.27 | 0.00 | 11 |
4 | ['Avoiding exercise'] | 1.00 | 0.00 | 15 |
5 | ['Low histamine diet'] | 0.93 | 0.00 | 14 |
6 | ['Acupuncture'] | 0.73 | 0.00 | 15 |
7 | ['NAC'] | 0.64 | 0.00 | 14 |
8 | ['Aspirin'] | 0.53 | -0.06 | 17 |
9 | ['Probiotics prebiotics'] | 0.47 | -0.20 | 15 |
10 | ['Melatonin'] | 0.46 | -0.08 | 13 |
11 | ['Fish oil etc.'] | 0.41 | 0.00 | 17 |
12 | ['Quercetin'] | 0.35 | -0.18 | 17 |
13 | ['Vitamin D'] | 0.29 | -0.05 | 21 |
14 | ['Magnesium'] | 0.28 | -0.22 | 18 |
15 | ['Vitamin C'] | 0.26 | -0.05 | 19 |
16 | ['Pepcid'] | 0.23 | -0.46 | 13 |
17 | ['Intermittent fasting'] | 0.18 | -0.36 | 11 |
18 | ['IV vitamins'] | 0.18 | -0.09 | 11 |
19 | ['CBD THC'] | 0.14 | -0.29 | 14 |
20 | ['Zinc'] | 0.12 | -0.06 | 17 |
21 | ['K vitamins'] | 0.09 | -0.09 | 11 |
22 | ['B vitamins'] | 0.00 | -0.17 | 18 |
23 | ['Plant based diet', 'Vegan diet'] | 0.00 | -0.40 | 10 |
24 | ['Multivitamin'] | -0.08 | -0.08 | 12 |
25 | ['Corticosteroids'] | -0.20 | -0.50 | 10 |
26 | ['Light exercise'] | -0.88 | -1.19 | 16 |
27 | ['Intense exercise'] | -2.18 | -2.45 | 11 |
Did those who reported positive outcomes from prayer have roughly the same change in severity as those who did not?
-- Change in severity score (-2 to +10, higher is more recovery) -- Significant improvement from prayer 2.37 Mild improvement from prayer 1.53 Not much improvement or worsening 1.72 Tried prayer 1.82 Did not try prayer 2.0
The chart below plots # of successful treatments on the y-axis and the number of non-successful treatments on the x-axis.
Non-successful includes 'effect unclear' and 'Not much benefit/harm'
A histogram plot of the # of succcessful treatments reported
A histogram plot of the # of non-succcessful treatments reported
The chart below plots # of highly successful treatments on the y-axis and the number of other treatments on the x-axis.
The same histogram, but only of those who mostly recovered
Among those who mostly recovered (27/398 people), these treatments were rated by some as leading to 'Significant improvement'
Count | Percentage of all surveyees who tried this | Ratio (count/percentage) - values above 13.4 suggest that these treatments do something | |
---|---|---|---|
Avoiding exercise | 6 | 59.7 | 10.1 |
Aspirin | 4 | 43.9 | 9.1 |
Ivermectin | 4 | 23.9 | 16.7 |
Magnesium | 4 | 69.7 | 5.7 |
Multiday fasting | 4 | 5.8 | 69.0 |
Quercetin | 3 | 51.8 | 5.8 |
Melatonin | 3 | 43.5 | 6.9 |
Nigella sativa oil | 3 | 17.1 | 17.5 |
Light exercise | 3 | 64.4 | 4.7 |
Glutenfree diet | 2 | 39.9 | 5.0 |
Probiotics prebiotics | 2 | 49.3 | 4.1 |
Zinc | 2 | 61.6 | 3.2 |
Acupuncture | 2 | 30.3 | 6.6 |
Vitamin C | 2 | 68.7 | 2.9 |
24-48 hour fasting | 2 | 11.1 | 18.0 |
Brain retraining | 2 | 13.0 | 15.4 |
Statins | 2 | 13.9 | 14.4 |
Anti inflammatory diet | 1 | 17.5 | 5.7 |
Wahls protocol | 1 | 2.3 | 43.5 |
Pacing strategies | 1 | 37.3 | 2.7 |
Multivitamin | 1 | 40.1 | 2.5 |
CBT | 1 | 20.3 | 4.9 |
Vitamin D | 1 | 77.8 | 1.3 |
Prayer | 1 | 30.5 | 3.3 |
Meditation | 1 | 43.7 | 2.3 |
Cymbalta | 1 | 6.4 | 15.6 |
B vitamins | 1 | 69.1 | 1.4 |
ALA | 1 | 21.5 | 4.7 |
Tylenol | 1 | 40.7 | 2.5 |
Advil | 1 | 47.8 | 2.1 |
Other NSAID | 1 | 26.2 | 3.8 |
Clopidogrel | 1 | 5.1 | 19.6 |
Plaquenil | 1 | 7.7 | 13.0 |
Macrolides | 1 | 5.3 | 18.9 |
Monoclonals | 1 | 3.6 | 27.8 |
Beta blockers | 1 | 25.6 | 3.9 |
Colchicine | 1 | 11.3 | 8.8 |
HBOT >1.5 ATA | 1 | 7.2 | 13.9 |
Pepcid | 1 | 28.6 | 3.5 |
Claritin | 1 | 28.1 | 3.6 |
Hydroxyzine | 1 | 5.3 | 18.9 |
LDN | 1 | 16.6 | 6.0 |
Ambien | 1 | 4.7 | 21.3 |
NAC | 1 | 39.0 | 2.6 |
Among those who mostly recovered (27/398 people), these treatments were rated by some as leading to 'Significant improvement'
Count | % of surveyees (with recovery data) who tried this | % (of those who tried this) who mostly recovered | |
---|---|---|---|
Avoiding exercise | 6 | 61.3 | 2.5 |
Aspirin | 4 | 44.0 | 2.3 |
Ivermectin | 4 | 23.6 | 4.3 |
Magnesium | 4 | 71.1 | 1.4 |
Multiday fasting | 4 | 5.3 | 19.0 |
Quercetin | 3 | 52.8 | 1.4 |
Melatonin | 3 | 44.7 | 1.7 |
Nigella sativa oil | 3 | 16.6 | 4.5 |
Light exercise | 3 | 64.6 | 1.2 |
Glutenfree diet | 2 | 41.0 | 1.2 |
Probiotics prebiotics | 2 | 49.0 | 1.0 |
Zinc | 2 | 63.6 | 0.8 |
Acupuncture | 2 | 30.4 | 1.7 |
Vitamin C | 2 | 69.6 | 0.7 |
24-48 hour fasting | 2 | 10.6 | 4.8 |
Brain retraining | 2 | 13.6 | 3.7 |
Statins | 2 | 14.3 | 3.5 |
Anti inflammatory diet | 1 | 17.3 | 1.4 |
Wahls protocol | 1 | 2.5 | 10.0 |
Pacing strategies | 1 | 38.7 | 0.6 |
Multivitamin | 1 | 40.5 | 0.6 |
CBT | 1 | 20.9 | 1.2 |
Vitamin D | 1 | 79.1 | 0.3 |
Prayer | 1 | 30.2 | 0.8 |
Meditation | 1 | 46.0 | 0.5 |
Cymbalta | 1 | 6.3 | 4.0 |
B vitamins | 1 | 69.8 | 0.4 |
ALA | 1 | 21.1 | 1.2 |
Tylenol | 1 | 40.7 | 0.6 |
Advil | 1 | 47.2 | 0.5 |
Other NSAID | 1 | 26.4 | 1.0 |
Clopidogrel | 1 | 5.3 | 4.8 |
Plaquenil | 1 | 7.0 | 3.6 |
Macrolides | 1 | 5.0 | 5.0 |
Monoclonals | 1 | 3.3 | 7.7 |
Beta blockers | 1 | 25.4 | 1.0 |
Colchicine | 1 | 12.1 | 2.1 |
HBOT >1.5 ATA | 1 | 7.8 | 3.2 |
Pepcid | 1 | 27.6 | 0.9 |
Claritin | 1 | 28.1 | 0.9 |
Hydroxyzine | 1 | 4.8 | 5.3 |
LDN | 1 | 15.8 | 1.6 |
Ambien | 1 | 4.0 | 6.2 |
NAC | 1 | 39.4 | 0.6 |
The mostly recovered consisted of the following chronic illness types:
Vaccine injured 23 Long COVID 4 Name: Chronic illness, dtype: int64
Among those with severity data (398 people), these treatments were popular. Here are the top 60.
% of surveyees (with recovery data) who tried this | % (of those who tried this) who mostly recovered AND reported significant improvement from this treatment | |
---|---|---|
Fish oil etc. | 46.7 | 0.0 |
Intense exercise | 44.7 | 0.0 |
Low histamine diet | 42.2 | 0.0 |
Intermittent fasting | 35.4 | 0.0 |
Corticosteroids | 34.4 | 0.0 |
Zyrtec | 33.4 | 0.0 |
CBD THC | 32.7 | 0.0 |
K vitamins | 25.6 | 0.0 |
Benzodiazepines | 19.3 | 0.0 |
IV vitamins | 18.8 | 0.0 |
Other pain relievers | 18.8 | 0.0 |
Graded exercise therapy | 18.1 | 0.0 |
Plant based diet | 16.8 | 0.0 |
Benadryl | 16.1 | 0.0 |
OMAD | 15.6 | 0.0 |
Allegra | 15.1 | 0.0 |
Pine needle tea | 13.6 | 0.0 |
Nigella sativa capsules | 13.6 | 0.0 |
Acrivastine | 12.1 | 0.0 |
Infrared sauna | 11.6 | 0.0 |
DAO | 10.8 | 0.0 |
Red light therapy | 10.8 | 0.0 |
Opiates | 10.1 | 0.0 |
HBOT <=1.5 ATA | 9.0 | 0.0 |
Vegan diet | 9.0 | 0.0 |
Fluvoxamine | 8.8 | 0.0 |
Elavil | 8.8 | 0.0 |
Keto diet | 7.0 | 0.0 |
Other diet | 7.0 | 0.0 |
Traditional sauna | 7.0 | 0.0 |
IV ozone | 6.8 | 0.0 |
Paleo diet | 6.8 | 0.0 |
Valtrex | 6.5 | 0.0 |
Luteolin | 6.3 | 0.0 |
EMDR | 6.3 | 0.0 |
Penicillins | 6.0 | 0.0 |
Lexapro | 6.0 | 0.0 |
Tetracyclines | 5.8 | 0.0 |
AIP diet | 5.8 | 0.0 |
Zoloft | 5.0 | 0.0 |
Carnivore diet | 5.0 | 0.0 |
Remeron | 5.0 | 0.0 |
IVIG | 4.8 | 0.0 |
Prozac | 4.8 | 0.0 |
Antiseizure | 4.5 | 0.0 |
Cromolyn | 4.3 | 0.0 |
Clarinex | 4.3 | 0.0 |
Monolaurin | 4.0 | 0.0 |
Flox antibiotics | 3.8 | 0.0 |
Aciclovir | 3.5 | 0.0 |
Ketotifen | 3.5 | 0.0 |
Other antihistamines | 3.5 | 0.0 |
Tollovid | 3.3 | 0.0 |
Vedicinals9 | 3.3 | 0.0 |
Other antibiotic | 3.3 | 0.0 |
Heparin | 3.3 | 0.0 |
Antibiotic unknown type | 3.3 | 0.0 |
Paxlovid | 3.0 | 0.0 |
Nigella sativa seed | 3.0 | 0.0 |
Eliquis | 3.0 | 0.0 |
'Realists'/'pessimists' are defined as people who reported more than 2 non-successful treatments for every successful treatment.
Number of realists/pessimists: 153 All surveyees: 469 Rankings from realists are shown below:
Treatments sorted from most data points (people who reported data for the treatment) to least. The top 60 are shown.
Treatments with more than 0 data points | Score | Risk score | # of data points (out of 469 surveyees) | Percentage tried (%) | |
---|---|---|---|---|---|
1 | [Vitamin D] | 0.53 | -0.03 | 365 | 77.8 |
2 | [Magnesium] | 0.76 | -0.04 | 327 | 69.7 |
3 | [B vitamins] | 0.59 | -0.09 | 324 | 69.1 |
4 | [Vitamin C] | 0.50 | -0.02 | 322 | 68.7 |
5 | [Light exercise] | -0.51 | -0.98 | 302 | 64.4 |
6 | [Zinc] | 0.46 | -0.04 | 289 | 61.6 |
7 | [Avoiding exercise] | 1.09 | -0.09 | 280 | 59.7 |
8 | [Quercetin] | 0.48 | -0.11 | 243 | 51.8 |
9 | [Probiotics prebiotics] | 0.67 | -0.08 | 231 | 49.3 |
10 | [Advil] | 0.36 | -0.12 | 224 | 47.8 |
11 | [Fish oil etc.] | 0.48 | -0.03 | 221 | 47.1 |
12 | [Intense exercise] | -2.12 | -2.27 | 213 | 45.4 |
13 | [Aspirin] | 0.50 | -0.09 | 206 | 43.9 |
14 | [Meditation] | 0.93 | -0.02 | 205 | 43.7 |
15 | [Melatonin] | 0.60 | -0.14 | 204 | 43.5 |
16 | [Low histamine diet] | 1.11 | -0.03 | 196 | 41.8 |
17 | [Tylenol] | 0.27 | -0.08 | 191 | 40.7 |
18 | [Multivitamin] | 0.26 | -0.09 | 188 | 40.1 |
19 | [Glutenfree diet] | 1.14 | -0.03 | 187 | 39.9 |
20 | [NAC] | 0.52 | -0.08 | 183 | 39.0 |
21 | [Pacing strategies] | 1.43 | -0.01 | 175 | 37.3 |
22 | [Intermittent fasting] | 0.71 | -0.07 | 164 | 35.0 |
23 | [Corticosteroids] | 0.55 | -0.39 | 161 | 34.3 |
24 | [Zyrtec] | 0.79 | -0.14 | 154 | 32.8 |
25 | [CBD THC] | 0.48 | -0.21 | 151 | 32.2 |
26 | [Prayer] | 1.18 | 0.00 | 143 | 30.5 |
27 | [Acupuncture] | 0.49 | -0.28 | 142 | 30.3 |
28 | [Pepcid] | 0.78 | -0.17 | 134 | 28.6 |
29 | [Claritin] | 0.51 | -0.19 | 132 | 28.1 |
30 | [K vitamins] | 0.42 | -0.06 | 124 | 26.4 |
31 | [Other NSAID] | 0.30 | -0.16 | 123 | 26.2 |
32 | [Beta blockers] | 0.57 | -0.48 | 120 | 25.6 |
33 | [Ivermectin] | 0.85 | -0.13 | 112 | 23.9 |
34 | [ALA] | 0.41 | -0.13 | 101 | 21.5 |
35 | [CBT] | 0.48 | -0.14 | 95 | 20.3 |
36 | [Benzodiazepines] | 0.87 | -0.25 | 95 | 20.3 |
37 | [IV vitamins] | 0.50 | -0.16 | 92 | 19.6 |
38 | [Other pain relievers] | 0.12 | -0.44 | 89 | 19.0 |
39 | [Anti inflammatory diet] | 1.16 | -0.02 | 82 | 17.5 |
40 | [OMAD] | 0.59 | -0.22 | 80 | 17.1 |
41 | [Nigella sativa oil] | 0.52 | -0.14 | 80 | 17.1 |
42 | [Graded exercise therapy] | -1.08 | -1.40 | 78 | 16.6 |
43 | [LDN] | 1.15 | -0.18 | 78 | 16.6 |
44 | [Plant based diet] | 0.72 | -0.07 | 76 | 16.2 |
45 | [Benadryl] | 0.33 | -0.25 | 73 | 15.6 |
46 | [Allegra] | 0.47 | -0.23 | 73 | 15.6 |
47 | [Pine needle tea] | 0.28 | -0.13 | 69 | 14.7 |
48 | [Statins] | 0.69 | -0.28 | 65 | 13.9 |
49 | [Nigella sativa capsules] | 0.54 | -0.03 | 63 | 13.4 |
50 | [Brain retraining] | 1.20 | -0.07 | 61 | 13.0 |
51 | [Red light therapy] | 0.58 | -0.10 | 59 | 12.6 |
52 | [Acrivastine] | 0.47 | -0.10 | 59 | 12.6 |
53 | [Infrared sauna] | 0.64 | -0.18 | 56 | 11.9 |
54 | [Colchicine] | 0.66 | -0.45 | 53 | 11.3 |
55 | [24-48 hour fasting] | 0.79 | -0.31 | 52 | 11.1 |
56 | [DAO] | 0.75 | -0.02 | 51 | 10.9 |
57 | [Opiates] | 0.96 | -0.20 | 46 | 9.8 |
58 | [Fluvoxamine] | 0.49 | -0.42 | 45 | 9.6 |
59 | [Elavil] | -0.16 | -0.60 | 45 | 9.6 |
60 | [HBOT <=1.5 ATA] | 0.61 | -0.29 | 41 | 8.7 |
Treatments sorted from highest risk score to lowest risk score.
Treatments with more than 58 data points | Score | Risk score | # of data points (out of 469 surveyees) | |
---|---|---|---|---|
1 | [Intense exercise] | -2.12 | -2.27 | 213 |
2 | [Graded exercise therapy] | -1.08 | -1.40 | 78 |
3 | [Light exercise] | -0.51 | -0.98 | 302 |
4 | [Elavil, Doxepin, Pamelor, Clomipramine] | -0.08 | -0.61 | 61 |
5 | [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... | 0.02 | -0.54 | 190 |
6 | [Tetracyclines, Flox antibiotics, Penicillins,... | -0.09 | -0.49 | 152 |
7 | [Beta blockers] | 0.57 | -0.48 | 120 |
8 | [Other pain relievers] | 0.12 | -0.44 | 89 |
9 | [Corticosteroids] | 0.55 | -0.39 | 161 |
10 | [HBOT <=1.5 ATA, HBOT >1.5 ATA] | 0.95 | -0.31 | 75 |
11 | [Acupuncture] | 0.49 | -0.28 | 142 |
12 | [Benzodiazepines] | 0.87 | -0.25 | 95 |
13 | [Benadryl] | 0.33 | -0.25 | 73 |
14 | [Statins, Red yeast rice] | 0.64 | -0.25 | 75 |
15 | [Allegra] | 0.47 | -0.23 | 73 |
16 | [OMAD] | 0.59 | -0.22 | 80 |
17 | [CBD THC] | 0.48 | -0.21 | 151 |
18 | [Claritin] | 0.51 | -0.19 | 132 |
19 | [LDN] | 1.15 | -0.18 | 78 |
20 | [Pepcid] | 0.78 | -0.17 | 134 |
21 | [Other NSAID] | 0.30 | -0.16 | 123 |
22 | [IV vitamins] | 0.50 | -0.16 | 92 |
23 | [CBT] | 0.48 | -0.14 | 95 |
24 | [Melatonin] | 0.60 | -0.14 | 204 |
25 | [Nigella sativa oil] | 0.52 | -0.14 | 80 |
26 | [Zyrtec] | 0.79 | -0.14 | 154 |
27 | [ALA] | 0.41 | -0.13 | 101 |
28 | [Ivermectin] | 0.85 | -0.13 | 112 |
29 | [Pine needle tea] | 0.28 | -0.13 | 69 |
30 | [Advil] | 0.36 | -0.12 | 224 |
31 | [Plant based diet, Vegan diet] | 0.61 | -0.12 | 116 |
32 | [Quercetin] | 0.48 | -0.11 | 243 |
33 | [Acrivastine] | 0.47 | -0.10 | 59 |
34 | [Red light therapy] | 0.58 | -0.10 | 59 |
35 | [Multivitamin] | 0.26 | -0.09 | 188 |
36 | [Aspirin] | 0.50 | -0.09 | 206 |
37 | [B vitamins] | 0.59 | -0.09 | 324 |
38 | [Avoiding exercise] | 1.09 | -0.09 | 280 |
39 | [Probiotics prebiotics] | 0.67 | -0.08 | 231 |
40 | [Tylenol] | 0.27 | -0.08 | 191 |
41 | [NAC] | 0.52 | -0.08 | 183 |
42 | [Intermittent fasting] | 0.71 | -0.07 | 164 |
43 | [Brain retraining] | 1.20 | -0.07 | 61 |
44 | [K vitamins] | 0.42 | -0.06 | 124 |
45 | [Magnesium] | 0.76 | -0.04 | 327 |
46 | [Zinc] | 0.46 | -0.04 | 289 |
47 | [Vitamin D] | 0.53 | -0.03 | 365 |
48 | [Glutenfree diet] | 1.14 | -0.03 | 187 |
49 | [Nigella sativa capsules] | 0.54 | -0.03 | 63 |
50 | [Fish oil etc.] | 0.48 | -0.03 | 221 |
51 | [Low histamine diet] | 1.11 | -0.03 | 196 |
52 | [Vitamin C] | 0.50 | -0.02 | 322 |
53 | [Anti inflammatory diet] | 1.16 | -0.02 | 82 |
54 | [Meditation] | 0.93 | -0.02 | 205 |
55 | [Pacing strategies] | 1.43 | -0.01 | 175 |
56 | [Prayer] | 1.18 | 0.00 | 143 |